Recipee (2 people)ingredientscherry tomatoes (a dozen)green beens (100g)white ham (100g)arugula grass (50g)fusili pasta (200g)3 portions of cream cheese (carré frais 0% fat free)sprig of rosemaryseasoning : balsamic vinegar, lemon juice, salt and peper, additional herbs (basil, provencal herbs etc…) methodcook the green beens in boiling water with salt and chicken or veggie cube (~10 min)drain…
Read MoreAlmost Nonfat Meatloaf With Oatmeal
Ingredients Preparation Tips Goes great with white rice or potatoes. Add any veggies or spices you prefer to the mixture before baking Because of how dry the ground turkey can be, the more liquid you can add via crushed tomatoes, tomato sauce, ketchup, etc. will help. I will sometimes add a small can of tomato…
Read MoreSlow Cooker Chicken and Sweet Potato Stew
Prep time15 minsCook time8 minsTotal time23 mins Serves: 8-10Ingredients2½ LBS Boneless, Skinless Chicken Tenders, Cubed4 TBSP Grade A Dark Maple Syrup5 Carrots, Peeled & Sliced2 Parsnips, Peeled & Sliced2 Shallots, Chopped2 Sweet Potatoes, Peeled & Sliced1 TBSP Garlic, Minced1 TSP Ground Thyme1 TSP Sea Salt1 TSP Black Pepper32 OZ Chicken Stock1 Cup Apple Cider2 TBSP…
Read MoreLiving Ultra Rare: The ABL+ Podcast
Barry Funkhouser, Paul Biderman and guests discuss living with ultra-rare diseases. The goal of this podcasts is to raise awareness about rare illness and the people who live with them. You can even listen to it right on the new website or on Spotify. In the most recent episode, Investigating adding ABL and related disorders…
Read MoreABL+ Foundation at the Harvard 2024 Rare Disease Hackathon
At the Harvard 2024 Rare Disease Hackathon this past March, Paul Biderman and Dr. Cindy Bredefeld represented the ABL+ Foundation and met with Caltech undergraduate Yoyo Benchetrit, who is studying biology and chemistry. This event introduced Yoyo to abetalipoproteinemia (ABL) for the first time. After speaking with Dr. Bredefeld, Yoyo shared: “I was able to…
Read MoreDr. Hussain working for the ABL+ community
1 – International registry and biorepository. Abetalipoproteinemia and related disorders are poorly understood ultra-rare diseases that are frequently met with suboptimal treatment. The Abetalipoproteinemia & Related Disorders Foundation recognized that an international registry to identify patients for clinical studies and a biorepository to identify biomarkers associated with disease progression would facilitate new treatment modalities. In this regard, Dr. Mahmood Hussain from…
Read MoreThe Nord Summit 2024
The Nord Summit 2024 (https://nordsummit.org/) took place on October 22-24 in Washington DC, joining over 900 patient leaders, researchers and scientists, healthcare advocates, pharma and biotech innovators, government agencies, and others to tackle the most pressing issues facing the rare disease community. National Organization for Rare Diseases (https://rarediseases.org/) is a mission-driven nonprofit improving the health…
Read MoreThe ABL+ Foundation new home on the internet: www.ablplusfoundation.org
The old ablfoundation.org website is gone, but the domain now redirects to our new website, focused heavily on all of the hypolipidemia illnesses the ABL+ Foundation considers interrelated. Comprehensive information on Abetalipoproteinemia, Familial Hypobetalipoproteinemia, and Chylomicron Retention Disease is available on our website. This site is designed to be helpful and informative for patients and…
Read More